Dear what kind of woman. I am faced with EXACTLY the same situation. The only difference being that we are not legally married. My partner was diagnosed with PPMS about eight months after we met. I decided to plough ahead against the advice of family and friends. At the time of my decision, I was sure it was the right one. Most days I feel it still is. With primary progressive as you probably know the course if the disease can be aggressive and unpredictable. He will most likely be wheelchair bound within months. He has deteriorated considerably but his mental state remains for the most part fairly positive. So far the bad mental state days are few and far between. Once in awhile he will look to pick a fight because he is frustrated. Always by his limitations. What advice to give you? I can't because I haven't figured it out in my own life. However as mentioned by another poster, be kind to yourself and take care of yourself. You are clearly patient and kind to him but unfortunately he is unable to reciprocate. I would say this to you. If you begin to forget what it means to be happy. If you cry more now than laugh or smile, then it may be time to rethink your life. I personally know that this is not an easy thing to think about. I know!
Whatever you decide to do, you will have supporters as well as critics. Be deaf to the critics. Unless they have walked a mile in your shoes, they do not know your life. Sending you lots and lots of love. Elizabeth.
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Dear what kind of woman. I am faced with EXACTLY the same situation. The only difference being that we are not legally married. My partner was diagnosed with PPMS about eight months after we met. I decided to plough ahead against the advice of family and friends. At the time of my decision, I was sure it was the right one. Most days I feel it still is. With primary progressive as you probably know the course if the disease can be aggressive and unpredictable. He will most likely be wheelchair bound within months. He has deteriorated considerably but his mental state remains for the most part fairly positive. So far the bad mental state days are few and far between. Once in awhile he will look to pick a fight because he is frustrated. Always by his limitations. What advice to give you? I can't because I haven't figured it out in my own life. However as mentioned by another poster, be kind to yourself and take care of yourself. You are clearly patient and kind to him but unfortunately he is unable to reciprocate. I would say this to you. If you begin to forget what it means to be happy. If you cry more now than laugh or smile, then it may be time to rethink your life. I personally know that this is not an easy thing to think about. I know!
August 4, 2015 - 4:52pmWhatever you decide to do, you will have supporters as well as critics. Be deaf to the critics. Unless they have walked a mile in your shoes, they do not know your life. Sending you lots and lots of love. Elizabeth.
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